The Arc of the United States, in collaboration with the Research and Training Center on Community Living at the University of Minnesota have launched the 2017 Family and Individual Needs for Disability Supports (FINDS) Survey which seeks to capture experiences of individuals with intellectual and developmental disabilities (I/DD) and their families on a range of life-span issues.
Accurate research from a diverse sample of representatives
is crucial to inform policymakers, researchers, and decisionmakers. In 2015, there were an estimated 1.7 million informal caregivers in the United States – this number is growing every day as baby boomers age. The FINDS Survey examines the informal supports provided by caregivers of individuals with intellectual and developmental disabilities (IDD). This research aims to learn more about how to help and sustain caregivers and the individuals they support.
This survey is intended to be taken by people aged 18 years or older who provide primary paid/unpaid and frequent support to a person with an intellectual or developmental disability (IDD) living in the United States and its Territories. They hope to gather survey data which is reflective of the diversity of the United States and we are excited to assist them in getting the word out about this important project.
Please feel free to share this information with your networks and encourage eligible individuals to take this survey. There are hard copies that can be printed available in English and Spanish as well as an online electronic version. The deadline to take the survey is Sunday, April 30, 2017.
If you have any questions regarding the project, please contact Lynda Anderson at firstname.lastname@example.org.